After trying high dose prednisone and high dose gabapentin in 2016, my rheumatologist suggested I try a different neuromuscular specialist in New York City. This Doc is a world renowned mitochrondrial expert. He saw me, tried a couple of genetic rests (negative) and then suggested we try IVIG.
He clearly said to me (on my second visit): “We know that statins are toxic to muscles” I wish I could have tape recorded him to share with everyone I meet.
So, in July I started 5 months of monthly 60gm IVIG (two days in a row, each month).
At the end of 2017 I’m not sure it has helped…. Going to meet with him in January 2018.
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